LIVE IN-PERSON: Implementing Improvements: Innovations Advancing Transition to Adult Care for Individuals with Neurodevelopmental Disabilities (November 9, 2026)

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Date: November 9, 2026

Location: 201 Brookline Ave Boston, MA 02215

As the number of individuals with neurodevelopmental disabilities (NDD) continues to grow, healthcare systems must strengthen their approach to supporting patients during the transition from pediatric to adult care. Implementation frameworks provide a strategic foundation for developing and integrating transition innovations that improve systems of care and patient outcomes.

Secure your place today—space is limited!

Price range: $0.00 through $100.00

Description

Overview

This course aims to engage stakeholders in the transition from pediatric to adult healthcare for individuals with neurodevelopmental disabilities (NDD) in Massachusetts. We will explore clinical, educational, and systems issues facing patients, families, and providers and collectively identify strategies and resources to address barriers and facilitate transition. Participants will hear lived experiences from patients, families, and the clinicians helping to navigate healthcare transition alongside the many other life transitions for those with NDD. Beyond identifying barriers, we will describe implementation science concepts to help create frameworks for putting solutions into practice.

We are excited to have several experts in the field of transition, including Peggy McManus from GotTransition, as featured speakers. The summit will include active participatory sessions in addition to lectures and panels, with opportunities to connect with other stakeholders in this field. There will also be a poster session where participants can share their innovative work with others at the summit.

Nationally Recognized Expert

Peggy McManus, MHS
President, The National Alliance to Advance Adolescent Health
Co-Director, Got Transition

Peggy McManus is President of The National Alliance to Advance Adolescent Health and Co-Director of Got Transition, the national resource center dedicated to improving the transition from pediatric to adult health care. Alongside Dr. Patience White, she co-led the development of the nationally recognized Six Core Elements of Health Care Transition, a framework widely used to improve transition planning and care. She has also guided the creation of numerous resources for youth, families, and clinicians, as well as influential research and policy initiatives focused on health care transition.

With more than 40 years of leadership in health policy and program development, Peggy has directed federal, state, and foundation-funded projects addressing adolescent and young adult health, children and youth with special health care needs, Medicaid and commercial insurance policy, managed care, payment innovation, and public health program development. Her work has helped shape national policy and improve access to high-quality, coordinated care for young people with chronic and complex health conditions.

Peggy earned her Master of Health Science degree from the Johns Hopkins School of Public Health. A native of Palmer, Massachusetts, she is honored to share her expertise with colleagues across the Commonwealth and beyond.

Course Format

Join us in person at 201 Brookline Ave., Boston, MA 02215. With limited seating available, be sure to register today to reserve your place!

Target Audience

All stakeholders involved in the transition from pediatric to adult care including pediatric and adult providers, payers, patients/families, researchers, policy makers and more.

Learning Objectives: 

At the conclusion of this educational program, learners will be able to:

    1. Describe challenges of healthcare transition for people with NDD, especially in the lived experience of patients and families.
    2. Identify potential innovations to improve healthcare transition for those with NDD.
    3. Describe implementation strategies for transition improvement across pediatric and adult systems.
    4. Develop strategies to effectively engage with stakeholders to improve collaborations.

Call for Abstracts

Share your work at the Neurodevelopmental Disabilities (NDD) Healthcare Transition Summit and contribute to advancing the transition from pediatric to adult healthcare. We invite abstracts highlighting innovative research, quality improvement initiatives, clinical programs, educational strategies, policy work, and lived experiences that support individuals with neurodevelopmental disabilities and their families.

This summit brings together healthcare providers, researchers, patients, families, policymakers, and other stakeholders to explore practical solutions, foster collaboration, and improve transition outcomes. Accepted abstracts will be presented during the summit’s poster session, providing an opportunity to showcase your work, exchange ideas, and connect with leaders in the field.

We welcome submissions that align with the course themes, including healthcare transition, implementation science, stakeholder engagement, systems improvement, and innovations that enhance care for individuals with neurodevelopmental disabilities.

The deadline to submit abstracts is Friday, September 11, 2026.

Submit Here

Registration

To register, please click on the register tab above. If this is your first time registering for a conference at Boston Children’s Hospital, you will need to create an account. Returning users can log in to their account to complete the registration process.   

 Registration Type  Rate  
 General Registration (CE Credits)   $100.00
 General Registration (Non-CE Credits)   $25.00
 Patients/Families  Free

Pre-registration is required. Once you have registered you will receive a confirmation email with a registration receipt. Course access instructions will be sent a few days prior to the course launch. If you have questions or need assistance with registration, please direct all inquiries to cmedepartment@childrens.harvard.edu.

Need Financial Assistance?

If you require financial assistance to cover the registration fee for this course, please contact us at continuingeducation@childrens.harvard.edu. We are committed to supporting access to continuing medical education and will be happy to discuss available options.

Course Cancellation, Transfer & Refund Policy

In-Person Course Registrations: For in person course registrations, refunds are available on the following schedule: 100% refund up to 8 weeks before the first day of the course; 50% refund up to 2 weeks before the first day of the course; No refunds will be processed for cancellations within 2 weeks of the first day of the course

“No shows” for both in person and virtual courses are subject to the full course fee and no refunds will be issued once the course has started.

Refunds will be made in the following ways: For payments received by credit or debit cards, the same credit/debit card will be refunded.

*If you have extenuating circumstances, please contact us at continuingeducation@childrens.harvard.edu

Additional information

Duration

Format

Profession

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Faculty

Allyson Baughman, MPH PhD
Laurie M. Douglass, MD

Dr. Douglass, is a pediatric neurologist at Boston Medical Center (BMC) and an associate professor of Neurology at Boston University Chobanian & Avedisian School of Medicine. Dr. Douglass specializes in pediatric epilepsy, dietary therapies including the Ketogenic Diet for epilepsy, seizures in babies born prematurely, and general child neurology. She received her medical degree from Tufts University School 

Andrew Dwyer, PhD, FNP-BC, FNAP, FAAN

Dr. Dwyer is a board-certified family nurse practitioner with 20+ years of experience working in interprofessional translational research teams at the Massachusetts General Hospital (MGH) in Boston and the University Hospital of Lausanne (CHUV) in Switzerland. He is a professor of nursing at Boston College, a 2023 Macy Faculty Scholar, and principal investigator in the P50 MGH-Harvard Center for Reproductive Medicine. He has clinical expertise in reproductive endocrinology, rare disorders of growth/puberty, genomics, and transitional care. He has published more than 130 articles and presents internationally. He serves on the Steering Committee of the Global Genomics Nursing Alliance and is a Fellow in the National Academies of Practice and the American Academy of Nursing. He currently serves on the Massachusetts Rare Disease Advisory Council and is a faculty member of the ITINERARE Rare Diseases Summer (Switzerland). Dr. Dwyer is an NIH-funded researcher who utilizes patient engagement, co-creation, and digital solutions to develop person-centered approaches to care and overcome genomic health disparities.

Terri Ferrell, MBA

Terri Ferrell is the Project Director of the Insurance Resource Center for Autism and Behavioral Health at UMass Chan Medical School’s Eunice Kennedy Shriver Center. She provides expertise and technical assistance to families, providers, and agencies navigating public and private insurance resources related to autism and behavioral health services.

Terri is a recognized advocate for individuals with autism and their families, serving in leadership roles with organizations including Advocates for Autism of Massachusetts (AFAM) and contributing to statewide initiatives focused on autism services, transition planning, and access to care. She has presented widely on autism insurance, behavioral health coverage, and systems of support. Terri holds an MBA from Northeastern University and completed a Leadership Education in Neurodevelopmental Disabilities (LEND) Fellowship at UMass Chan Medical School.

Elaine Gabovitch, MPA

Elaine Gabovitch serves as the State Title V Family Leader at the Massachusetts Department of Public Health following her 2025 retirement as Director of the Division for Children & Youth with Special Health Needs (CYSHN) and State Title V CYSHN Director. She also holds faculty appointments at the UMass Chan Medical School-Eunice Kennedy Shriver Center’s Leadership Education in Neurodevelopmental Disabilities (LEND) Program and Department of Family Medicine & Community Health.

With more than two decades of experience advancing care for children and youth with special health needs, Elaine has led initiatives focused on family-centered care, health equity, developmental monitoring, autism awareness, and successful transitions to adult healthcare systems. She has contributed to numerous state and federally funded projects, including efforts to improve access, reduce disparities, and strengthen systems of support for individuals with disabilities and their families.

Elaine is a recognized disability advocate and family leader, with her work inspired by her experience as the parent of an adult son with autism spectrum disorder.

Peggy McManus, MHS
President, The National Alliance to Advance Adolescent Health
Co-Director, Got Transition

Peggy McManus is President of The National Alliance to Advance Adolescent Health and Co-Director of Got Transition, the national resource center dedicated to improving the transition from pediatric to adult health care. Alongside Dr. Patience White, she co-led the development of the nationally recognized Six Core Elements of Health Care Transition, a framework widely used to improve transition planning and care. She has also guided the creation of numerous resources for youth, families, and clinicians, as well as influential research and policy initiatives focused on health care transition.

With more than 40 years of leadership in health policy and program development, Peggy has directed federal, state, and foundation-funded projects addressing adolescent and young adult health, children and youth with special health care needs, Medicaid and commercial insurance policy, managed care, payment innovation, and public health program development. Her work has helped shape national policy and improve access to high-quality, coordinated care for young people with chronic and complex health conditions.

Peggy earned her Master of Health Science degree from the Johns Hopkins School of Public Health. A native of Palmer, Massachusetts, she is honored to share her expertise with colleagues across the Commonwealth and beyond.

Susan Shanske, MSW, LICSW
Director, Transitional Care Support, BRIDGES Adult Transition Program; Clinical Social Worker, Social Work Department

Susan Shanske, LICSW, is the Director of Transitional Care Support with the BRIDGES Adult Transition Program at Boston Children’s Hospital where her full time job is improving the transition from pediatric to adult healthcare.  Susan received her MSW from Simmons College School of Social Work and has been a social worker at Boston Children’s Hospital for over 25 years, with experience in multiple outpatient medical programs.  In her BRIDGES role, she provides leadership as a content matter expert on transition, actively involved in presentations and research on the topic.  She leads several initiatives to improve care, including a Transition Learning Collaborative internal to BCH where teams are coached by the BRIDGES team through various quality improvement transition efforts in their areas.  She is a previous hospital Family Advisory Council co-chair and also co-led the statewide initiative to improve healthcare transition for individuals with neurodevelopmental disabilities in the state of Massachusetts.  The initiative allowed her to partner with stakeholders across the state to address related systems issues and she co-directed the previous 2 summits to engage participants in the work.  She is passionate about the topic of healthcare transition and a national social work leader in the space. Susan is currently pursuing a doctorate in health science with a focus on organizational excellence and is actively engaged in multiple national research projects, leading several.

Maura Sullivan, MPA
Chief Executive Officer
The Arc of Massachusetts
Ahmet Uluer, DO, MPH
Director, BRIDGES Adult Transition Program; Director, Adult Cystic Fibrosis Program
Assistant Professor of Pediatrics, Harvard Medical School

Amy Weinstock

Amy Weinstock is the Director of the Insurance Resource Center for Autism and Behavioral Health at UMass Chan Medical School’s Eunice Kennedy Shriver Center and an instructor in the Department of Psychiatry. She is a nationally recognized advocate and expert on autism insurance policy, helping advance legislation that expands access to medically necessary autism services in Massachusetts.

Amy has extensive experience supporting individuals with autism and their families through advocacy, education, and systems change. She serves as a Commissioner on the Massachusetts Autism Commission and contributes to statewide initiatives focused on improving access to care and services. She completed a Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Fellowship at the Shriver Center and has received numerous awards recognizing her leadership and advocacy efforts.

Schedule

Time Session Speaker(s)
8:30–9:00 AM Welcome Susan Shanske, LICSW; Ahmet Uluer, DO, MPH
9:00–10:00 AM Perspectives Panel Facilitator: Elaine Gabovitch, MPA
Panel Discussion: Featuring perspectives from a young adult, parent, a pediatric provider, and an adult provider, highlighting experiences and insights across the transition from pediatric to adult care.
10:00–10:15 AM Break
10:15–10:30 AM Putting the Pieces in Place for Progress: What is Implementation Science? Allyson Baughman, MPH, PhD
10:30–11:30 AM Implementation Exemplars: From Brainstorming to Sustaining Facilitator: Allyson Baughman

Panelists:

  • Maura Sullivan — Operation Housecall
  • Amy Weinstock — Insurance Resource Center for Autism and Behavioral Health
  • Terri Ferrell — Insurance Resource Center for Autism and Behavioral Health
11:30 AM–12:00 PM A Community-Centered Strategic Approach for Enhancing the Wellbeing of Youth with Epilepsy and Developmental Disabilities and Their Caregivers During the Transition to Adult-Serving Systems Laurie Douglass and Boston Medical Center Team
12:00–1:15 PM Lunch & Poster Session
1:15–2:30 PM Implementation World Café TBD
2:30–3:00 PM Break & Poster Viewing
3:00–4:15 PM Ideas to Action: Shaping the Future of Adolescent and Young Adult Rare Disease Care in Massachusetts Andrew Dwyer, PhD, FNP-BC, FNAP, FAAN
4:15–5:00 PM Reflections on Health Care Transition Progress Achieved and Awaiting Peggy McManus, MHS